We are fundraising to raise money for a medical trial for a topical cream that could help treat the disfiguring facial growths that grow as part of the condition...currently Ava has regular painful laser surgery to remove them...if you would like to donate or read more about it just go to the ATSS website...
Sharon has just taken some fabulous family photos for them...so I stole this photo as my computer is still dead...
And great news is that the brain surgery she has had this week in Melbourne to try and eliminate her epilepsy has gone well...now we are just waiting to see if it was successful! And hopefully a computer whizz friend can fix my computer tomorrow and save my photos...Lissy
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